WHO / ARGENTINA CHILDREN DISABILITIES

13-Jul-2021 00:04:47
In Argentina, WHO and partner PANAACEA are supporting caregivers of children with developmental delays and disabilities through the Caregiver Skills Training (CST) programme. WHO
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STORY: ARGENTINA / SUPPORT FOR CAREGIVERS
TRT: 04:51
SOURCE: WHO
RESTRICTIONS: PLEASE CREDIT WHO ON SCREEN
LANGUAGE: SPANISH / NATS

DATELINE: FILE
SHOTLIST
FILE - 10 DECEMBER 2020, MORENO, ARGENTINA

1. Drone shot, town of Moreno, Buenos Aires Province
2. Med shot, Karina Visciglia playing with her sons in the family home
3. Various shots, Gabriel playing with a book at a table
4. Med shot, Gabriel looking at his drawing on a fridge
5. Med shot, Gabriel and Karina looking at the drawing on a fridge
6. Med shot, Karina ties Gabriel’s shoelaces
7. Various shots, Karina and her children walking in the street
8. SOUNDBITE (Spanish) Karina Visciglia, Participant in Caregiver Skills Training Programme:
“It was hard, at that moment, reaching my son. I didn't know how. And the programme showed me there was a way. I just had to learn what to do to reach him.”
9. Wide shot, Karina helping Gabriel in the park
10. Med shot, Karina hugs Gabriel in the park
11. SOUNDBITE (Spanish) Karina Visciglia, Participant in Caregiver Skills Training Programme:
“He was in a parallel world. Today he is a son that is there, that is part of us. He was always part of the family but now he interacts. He makes himself heard. He expresses his decisions and make others respect them. What he wants, what he feels. That is because of the programme.”

FILE - 26 DECEMBER 2020, BUENOS AIRES,ARGENTINA

12. Wide shot, PANAACEA logo at the organization’s office in Buenos Aires
13. Various shots, Sebastian Cukier at his laptop participating in a virtual training session
14. SOUNDBITE (Spanish) Dr Sebastian Cukier, Child and Youth Psychiatrist and PANAACEA Co-Founder:
“When children have a problem, parents lean on professionals. This programme empowers parents to guide their children, have a better relationship and communication.”
15. Close up, Sebastian writes in his notebook
16. Close up, virtual training session
17. SOUNDBITE (Spanish) Dr Sebastian Cukier, Child and Youth Psychiatrist and PANAACEA Co-Founder:
“Something important about CST is that caregivers set the goals. They tell what worries them about their children and what they want to improve. We help them realise those objectives.”
18. Close up, Sebastian at his office
19. Close up, virtual training session at the office of Natalia Barrios
20. Various shots, Natalia looking her laptop while participating in a virtual training session
21. SOUNDBITE (Spanish) Dr Sebastian Cukier, Child and Youth Psychiatrist and PANAACEA Co-Founder:
“When COVID appeared we were forced to do it remotely. But that gave us the chance, once it was adapted, to do it in distant places without having to move.”
22. Med shot, Natalia looking her laptop while participating in a virtual training session
23. Wide shot, virtual training session with Sebastian, Natalia and programme participant
24. SOUNDBITE (Spanish) Natalia Barrios, Child and Youth Psychiatrist and CST Facilitator
“During home visits, we check how parents put into practice some of the key tips and messages from each session and we give them some advice about how to improve that interaction or how to adapt some strategies that may be missing in order to achieve the goals established at the beginning. Things parents want to improve and children can achieve throughout caregivers-mediated interventions.”
25. Med shot, Natalia looking her laptop while participating in a virtual training session
STORYLINE
In Argentina, WHO and partner PANAACEA are supporting caregivers of children with developmental delays and disabilities through the Caregiver Skills Training (CST) programme.

Over 50 million children have developmental disabilities such as autism or speech disorders. They are more likely to miss out on education and experience abuse, and their caregivers often lack support.

Gabriel was diagnosed with autism when he was three years old. At the time, he did not speak or interact with his family. As a mother of four and a school teacher, Karina Visciglia struggled to care for her family and find Gabriel the support he needed.

After Gabriel’s diagnosis, Karina sought help from doctors and specialists, who referred her to a programme called Caregiver Skills Training (CST).

SOUNDBITE (Spanish): Karina Visciglia, Participant in Caregiver Skills Training Programme:
“It was hard, at that moment, reaching my son. I didn't know how. And the programme showed me there was a way. I just had to learn what to do to reach him.”

The World Health Organization (WHO) developed CST for families of children with developmental delays or disorders, including autism. The programme takes a family-oriented approach and is designed to be delivered by trained non-specialists — such as community-based workers or peer caregivers — as part of a network of health and social services for children and their families.

SOUNDBITE (Spanish): Dr Sebastian Cukier, Child and Youth Psychiatrist and PANAACEA Co-Founder
“When children have a problem, parents lean on professionals. This programme empowers parents to guide their children, have a better relationship and communication.”

The programme has been made available for adaptation and field testing in several countries. In Argentina, a local adaptation team, coordinated by WHO and Autism Speaks, trained international partner PANAACEA to facilitate the programme.

SOUNDBITE (Spanish): Dr Sebastian Cukier, Child and Youth Psychiatrist and PANAACEA Co-Founder
“Something important about CST is that caregivers set the goals. They tell what worries them about their children and what they want to improve. We help them realise those objectives.”

The programme consists of group sessions and individual home visits, focused on training caregivers how to use everyday play and home activities and routines as opportunities for learning and development. The sessions specifically address communication, engagement, daily living skills, challenging behaviour and caregiver coping strategies.

SOUNDBITE (Spanish): Natalia Barrios, Child and Youth Psychiatrist and CST Facilitator
“During home visits, we check how parents put into practice some of the key tips and messages from each session and we give them some advice about how to improve that interaction or how to adapt some strategies that may be missing in order to achieve the goals established at the beginning. Things parents want to improve and children can achieve throughout caregivers-mediated interventions.”

The COVID-19 pandemic has had major impacts on mental health but particularly on that of women and those taking care of young children with developmental disabilities.

In late 2020, with the support of WHO and Autism Speaks, the CST programme was adapted to an online version so that it has been able to continue during the pandemic. PANAACEA also remotely trained four facilitators in three community centers in the Buenos Aires region.

SOUNDBITE (Spanish): Dr Sebastian Cukier, Child and Youth Psychiatrist and PANAACEA Co-Founder
“When COVID appeared we were forced to do it remotely. But that gave us the chance, once it was adapted, to do it in distant places without having to move.”

After participating in the programme, Karina saw significant improvements in her ability to connect and communicate with her son.

SOUNDBITE (Spanish): Karina Visciglia, Participant in Caregiver Skills Training Programme:
“He was in a parallel world. Today he is a son that is there, that is part of us. He was always part of the family but now he interacts. He makes himself heard. He expresses his decisions and make others respect them. What he wants, what he feels. That is because of the programme.”
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